Write Your Personal Statements For FDA Public Comment: Community Workshops

Nov 06 2026
Write Your Personal Statements For FDA Public Comment: Community Workshops

Online sessions hosted by Wake Up Narcolepsy

Each session’s content will remain the same. Choose one that works best for you. 

Option 1: Tuesday, Nov 10, 2026 8:30pm ET |  Register

Option 2: Wednesday, Nov 11, 2026 11:00am ET |  Register

Option 3: Thursday, Dec 3, 2026 2:30pm ET |  Register

Option 4: Wednesday, Dec 9, 2026 6:00pm ET |  Register

On October 14, 2026, the FDA announced the Rare Disease Framework Initiative, a major effort to modernize and systematize rare disease drug development.

Now it’s your turn. The call for public statements is open from October 28th until December 11th. We’re hosting small group workshops to help you prepare. You’ll learn the key pieces to a compelling statement, receive templates to guide your drafts and be able to exchange feedback with other community members. 

Each one of us can have a voice in the future of treatment. You don’t need to be an advocacy expert to join. If you are impacted by Narcolepsy or Idiopathic Hypersomnia, this workshop is for you. 

Register for the above session that works best for you to secure your spot today!