Monday, February 24, 2025
Pricey Chairman Guthrie, Rating Member Pallone, Chairman Cassidy, and Rating Member Sanders,
The undersigned represents greater than 5,600 people who’re immediately impacted by childhood most cancers, together with survivors and their households, households who’ve misplaced kids to this devastating illness, and the devoted healthcare suppliers who deal with America’s youngest most cancers sufferers.
Yearly, one in 285 kids within the U.S. will probably be recognized with most cancers earlier than their 20th birthday, amounting to roughly 16,000 new diagnoses. Regardless of the U.S. being the worldwide chief in scientific innovation, most youngsters recognized with most cancers are nonetheless handled with medication that had been authorized greater than thirty years in the past. Previously three a long time, solely seven new medication have been authorized by the FDA particularly for childhood most cancers—in comparison with greater than 200 new medication authorized for grownup most cancers. Not like the vast majority of grownup most cancers scientific trials, that are industry-funded, most pediatric most cancers trials rely closely on federal funding from the Nationwide Most cancers Institute, leaving kids with little alternative however to endure outdated, poisonous therapies. Which means that most youngsters proceed to be “reduce, burned, and poisoned” to “deal with” their most cancers. These therapies may cause irreversible hurt to kids’s growing our bodies and brains. Tragically, greater than 95% of childhood most cancers survivors will face extreme health-related late results by 45 years of age—issues primarily brought on by the very therapies that had been supposed to avoid wasting their lives.
On behalf of the American Childhood Most cancers Group, greater than 5,600 voices are united in calling in your help in passing the Give Children a Probability Act into legislation.
Launched on February 13, 2025, by Representatives Michael McCaul (R-TX) and Debbie Dingell (D-MI), this pivotal bipartisan laws contains a number of vital provisions:
- A five-year reauthorization of the Creating Hope Uncommon Pediatric Precedence Evaluate Voucher (PRV) Program, incentivizing the pharmaceutical {industry} to spend money on pediatric drug improvement with out imposing any further monetary burden on the federal authorities.
- The Give Children a Probability Act, which grants the FDA authority to compel corporations to check drug mixture therapies within the pursuit of life-saving therapies for youngsters.
- The Innovation in Pediatric Medicine Act, which introduces penalties to make sure that corporations full pediatric research on schedule, bringing new hope for therapies and cures.
- The RARE Act, strengthening the Orphan Drug Act to additional profit uncommon illness therapies.
Kids combating most cancers urgently want champions within the 119th Congress—heroes who will battle for a future the place their prognosis contains revolutionary therapies resulting in a long-term treatment. We’re asking you to be our youngsters’s heroes!
Based in 1970, the American Childhood Most cancers Group (ACCO), is the nation’s oldest and largest non-profit devoted to childhood most cancers. We advocate at each the federal and state ranges and collaborate with the World Well being Group to enhance world treatment charges for childhood most cancers. Notably, ACCO is the one nationwide non-governmental group actively working on the state degree. Since 2018, we have now secured greater than $120 million in state funding for childhood most cancers analysis throughout seven states. With our management within the childhood most cancers neighborhood, and our deep connections with sufferers, households, and advocates, ACCO is absolutely dedicated to partnering with Congress to go laws that may deal with the speedy and urgent wants of those younger sufferers.
We urge you to take decisive motion and champion this vital laws—as a result of each little one recognized with most cancers deserves the possibility to develop up, stay a full life, and change into the following technology of leaders, innovators, and advocates. “…as a result of youngsters can’t battle most cancers alone!®”
Please be happy to contact Ruth Hoffman, CEO, at rhoffman@acco.org or by cell at 202-262- 9949 with any questions or different wants.
Respectfully,
Ruth Hoffman, CEO, American Childhood Most cancers Group
Keep tuned for potential updates and subsequent steps! Collectively, we may help give youngsters an opportunity—as a result of youngsters can’t battle most cancers alone!®
